<ul><li>The author, living with Duchenne muscular dystrophy since the age of five, now relies on carers for everyday tasks and uses specialized equipment like a cough assist machine and hoist.</li><li>Despite his physical challenges, he sees himself as a regular guy thanks to the support of his family and friends who never treated him differently, fostering a sense of normalcy.</li><li>Using technology like the Open Sesame app to control devices with head movements and a custom Xbox setup, the author finds joy in activities like listening to music and gaming that provide freedom and fun.</li><li>His resilience is evident through surviving near-death experiences, finding love, coping with loss, and maintaining a positive outlook on life while advocating for better treatment options and a cure for Duchenne muscular dystrophy.</li></ul>

Title: My Life With Duchenne: Living Fully, My Way

Discover more